Saturday, May 3, 2008

Reframing the Unfortunate

I read Andy's post from yesterday, which made me tear up because it was so beautifully written and perfect, and sounded just like him. He's amazing.

To catch everyone up post-surgery (and muddle through some resulting ruminations):

I am home today, having spent the night at Becky's parents' house, and having had a follow-up visit with my eye doctor at the Marion Eye Center. A few facts for anyone who likes to have them:
  • Apparently having a detached retina is a pretty darn serious condition. If they don't catch it in time, it can lead to blindness. And, as with any surgery, there's no guarantee they can fix the problem and make it like new again.
  • I went into the surgery with very little information as to the procedure itself, possible risks involved, or what to expect upon waking.
  • I left Marion Eye Center to come home around 4:30, got into the car with Becky to head to St. Joseph Hospital in Kirkwood, MO a bit after 5pm, and got prepped for surgery around 7pm. Then we waited. Becky has a lovely picture of me with my eyes taped shut and the word "YES" written above my right eye. If we can figure out how to get it from her phone to this blog, I'll eventually share it with you.
  • I entered the actual surgery around 9:30, finished around midnight, and left the hospital to go back to the Tadlock's (where I stayed the night) around a 12:45am.
So here is the bad news. Apparently, the retina in my other eye is nearly detached as well. So they want to operate on it too, but they want to wait until the right eye has healed to do it. They've said about 4 weeks from now, but if there is a problem with my right eye (which, as of right now, there is), then they'll probably just do it anyway and I'll do my best with little to no vision in either eye... and pray everything heals up over time.

I'm not yet sure what this means with regard to my summer classes, my ASCA conference trip, my hope to help the Neo-Futurists with Coyote Ugly choreography, or other random summery-type vacation plans.

Here's what I do know: I've spent a lot of time thinking about what I would rather lose: my sight or my hearing. I always went with hearing. For a number of reasons. I'm an observer... sight is how I take in my world and make sense of it. It's how I process and the main means through which I gather information. If I lost my hearing, I figured I'd miss music and talking and sounds, etc. - but I could still interact with my world. I could learn ASL and work with hearing impaired clients or work in a school for non-hearing students. Loss of eyesight kind of means loss of the ability to be a counselor, to my mind, because you lose the ability to take in one of the fundamental pieces of information you need when working with clients: nonverbals. It's what we're noticing when we look for incongruencies or want to see the physical impact of a certain topic. I don't know how I would do the job without sight.

Also... to be totally honest... I am prideful about my eyes. Not in an overtly "sinful" way (if you go for such terminology... which I don't... I guess I see it more as ego or attachment), but it's the one part of my body I've always liked... been proud of and really considered special. So, the irony of all this is not lost on me.

But here's what else I know: This seems to be a gift... an opportunity of sorts, because I realized a few things during the several hours between finding out I was in danger of going blind in one eye to finding out I was in danger of going blind in both.

I have always been able-bodied. My whole life, I've been pretty disease-free and relatively healthy. I had no knowledge of what it was like to have a disability, often felt I didn't know what to say or how to act when I met people who did (which is not very helpful as a counselor, btw), and had no idea what it was like to walk into a room and have everyone staring-but-not-trying-to-stare-too-hard because you have a huge patch with tons of tape over your eye with your glasses smooshed over everything and precariously resting on your nose.

It's an incredible opportunity to broaden my understanding of and empathy for one of the many ways our human experiences can vary. If I do get better and can work in a school setting, I will be even more ready and able to help special needs students or children, even parents, with disabilities. I'll have a better sense of what they or their family members are going through, and I'll feel more comfortable talking about it because it no longer feels completely foreign to me.

If I do lose my sight in one or both eyes, or end up severely visually impaired (which, I'm obviously hoping I do not, but the realist in me does not want to be caught totally off guard by bad news), then I can go back and earn my Ph.D. or use my skills to write books geared toward school counselors to use as bibliotherapy, or pursue the ministry, or a whole host of other things. And maybe some of those paths will not ultimately be open to me, and maybe others I've not even thought of will.

For whatever reason, my whole family (e.g., mother, fathers, brother, sister, cousins, etc.) all believe that nothing happens without a reason and everything has purpose. All those folks might give the power behind such things a different name, or label, but the overriding idea is that God (be it the you-God, an other-God, or something that is simply more powerful and more knowing than the "little-I" you) does not give you anything you cannot handle. Nor do things come without a greater lesson, opportunity, or purpose. I do believe that.

So, despite still feeling pretty scared right now, and somewhat disoriented both mentally and physically, I also feel there is a reason. Though I might not see it right now, I will in time. Perhaps more metaphorically than literally... but we shall see. (Ha! There's another one. Hard to get away from that pun potential!) Despite this sorrow, I look for - and believe in - the possibility of joy.

6 comments:

Amy said...

Jeez. Wow. Jim and I are sending the happiest of happy thoughts to you and Andy and Ari.

Genevra said...

Thank you... we really do appreciate it!

andrewstern said...

Our thoughts are with you in this very trying time! Stay strong, I'm sure you'll get through this. If there is any way we can help, please let us know.

Claff said...

Sweetie, I didn't realize it was so serious - otherwise I wouldn't have blithely joked on Facebook - be strong (which you're already doing, clearly), be positive (ditto), and know that all of us here are sending you the warmest of thoughts and prayers and wishes and virtual hugs.

love love love.

Star Lawrence said...

I can relate to everything you say--lost sight in my right eye a year ago from four failed surgeries for detached retina. I sort of Magoo around now--with drugstore glasses and magnifying glass for reading papers and mags. Also listen to books on CD--which hasn't been a bad change--instead of reading novels. You do feel vulnerable out in public, though, despite not being "blind." Also my eye looks funky--red, big pupil. But hey, we are still stumbling around! I wouldn't go so far as to say I am thankful for it, though. I wish I could get a lawyer to take the case! Also--the doctor's instructions for facedown recovery were so wrong and bad I sent my dog away and he got killed. I rewrote them after consulting with many top specialists (he was not one, alas). http://facedownrecoveryfromretinalsurgery.blogspot.com.

Star Lawrence said...

Make that dot-com with an M, not an R. See? Can't see!